CDHNF - Children's Digestive Health and Nutrition Foundation
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Celiac Disease

Psychosocial Issues

Chronic illness often presents challenges to psychosocial adjustment at both the individual and family level. At the same time, psychosocial adjustment plays a role in treatment effectiveness, and management of celiac disease, which ultimately bear upon the patient’s quality of life. The practical, social and emotional impact of a celiac diagnosis is an ever present reality for a person with the condition. No longer able to take the convenience, availability or content of food for granted, a celiac patient must remain armed with the knowledge of a food scientist, the savvy of a world class chef schooled in all aspects of food preparation, and the ability to anticipate and prepare for the need to bring along gluten-free alternatives for events, meetings, and dinners out.

Some patients are relieved when diagnosed with Celiac Disease because it is a disease that can be managed with diet alone. However, others are concerned about the drastic diet modification and lifestyle change. Fears such as eating out can result in social isolation and if persistent should be discussed with the dietician or gastroenterologist. Consulting regional support groups can be of great assistance and even provide lists of gluten free restaurants.

The sudden dietary and lifestyle change may induce depression at varying degrees and involvement in support groups may help especially with teenagers. Within this group they can share their feelings and learn coping skills. In rare occasions counseling may be necessary.

Celiac Disease is an education campaign on Pediatric Celiac Disease by the Children's Digestive Health & Nutrition Foundation.

Visit our for more information on Kids IBD and Pediatric GERD.

Educational support for the CDHNF Pediatric Education Campaign was provided by sponsors University of Maryland Center for Celiac Research and Prometheus Therapuetics and Diagnostics.